CAMEO collects different types of information in order to better provide information, or to understand how its resources are used. This includes simple things such as information about your locale (city, province/state/country) and type of person you accessing the website as (patient, support person, health care provider, general public). For some resources, CAMEO may also ask you to participate in additional questionnaires to gather additional information.
In all cases, your data is kept strictly confidential, and is never shared outside of the CAMEO research team. If CAMEO reports on any of its research activities based on your input (registration, questionnaires, use of resources), all information will be reported in aggregate (for example, as percentages or total counts) and all reasonable steps will be made to ensure anonymity.
If you have any questions or concerns, please contact us.